3 Diseases Doctors Often Miss | PCOS + EDS + Thyroid Disorders

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Doctor Mike

Acum 2 luni

In this video, we will be discussing EDS (Ehlers Danlos Syndrome), PCOS (polycystic ovary syndrome), and thyroid disease. As a family medicine doctor, I am regularly confronted by patients exhibiting symptoms of common ailments. Sore throats, acne, hair loss… all often explainable by a common condition. Sometimes though, I come across a series of common symptoms that when presenting at once can actually be diagnosed as a rare and incurable disease. Today, I’m exploring these diseases that are regularly missed by doctors and often result in patients going years before finally getting a treatment that’s right for them. Read more on them below:
PCOS: www.womenshealth.gov/a-z-topics/polycystic-ovary-syndrome
Ehlers-Danlos Syndrome: medlineplus.gov/genetics/condition/ehlers-danlos-syndrome/
Hypothyroidism: medlineplus.gov/hypothyroidism.html
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-Doctor Mike Varshavski
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Comentarii
Renée Lauzon
Renée Lauzon Acum 5 ore
I was diagnosed with PCOS after years of asking my doctors to test for it. Now that I was finally diagnosed a few years ago the doctors are arguing with me on treatment methods that don't work for me. A hormonal IUD and birth control pills control my symptoms well but this new doctor is trying to convince me having a kid will fix everything....
Chu Chuns
Chu Chuns Acum 7 ore
So, what do you do about doctors that blame, ignore, or maybe just are not very experienced in their practice? How do you know when a doctor is taking you seriously? Or when you need to see a specialist? Insurance can play a huge part in how you are cared for.
kitkatminda
kitkatminda Acum 11 ore
Thank you doctor mike. I always knew since my first cycle something was wrong , i missed my second month my mom was thats normally your just piggybacking off of me. Fast forward a few years still missing periods, or they are late or early . Doctors say its irregular bleeding and nothing to worry about , fast forward to my 20s, my cramps are so bad i can't sit lay down or anything comfortably. My periods start missing 6 to 7 months at a time, doctors are still saying its nothing to worry about that there trans just say its irregular bleeding, 24 years old now finally get in front of a specialist, first sit down he tells me based off of everything i told him its pcos and he perscibes metformin after confirmation of tests. He said the rings was the worst he's ever seen. Metformin didn't agree with me and ive been on mirena since.
kitkatminda
kitkatminda Acum 11 ore
I should also note i was a smoker of cigarettes since i was 14, which according to my specialist smoking +pcos =very very Dangerous situation. So I was lucky, took another 3 years for me to quit but i was trying to quit more often once i was diagnosed. Will be 8 years in august since my last cigarette
Sarah McMannes
Sarah McMannes Acum 22 ore
I was 17 when I was diagnosed with PCOS. When the doctor came in to room she casually mentioned it without explaining what it was and what I should do to combat symptoms. I remember having to go home and google search my diagnosis because I was scared, confused, and alone. It’s so sad that certain doctors (definitely not all) think that since they figured out the diagnosis then the job is done. I just wish I could go back and hug my 17 year old self and tell her things will get sorted out.
Melody Lights Ahgases Starlight Inspirit
Melody Lights Ahgases Starlight Inspirit Acum o Zi
I have irregular menstruation since my teen years but was told it was due to stress in school. When I got married, we had our first baby after being together for 5 years. We were thrilled because finally we have a child. However, I lost her during my 4th month. And through the course of check ups after the miscarriage, it was found out that I actually have hyperthyroidism and PCOS. I was told this should have been diagnosed earlier so that my fertility could have been put in check, and that I could have been monitored more during my pregnancy than just the normal monthly check ups. So now, I encourage women I meet to have check ups with their OBGYN whenever there is anything not normal with their menstrual cycles, because in our country, women only go to OBGYNs when they are pregnant.
millie hayes
millie hayes Acum o Zi
As someone who has hypermobility syndrome, which is like eds but not as bad but at the same time is still rare, I know how it is for doctors to not believe you. Not only do doctors not believe you, but other people won't either. I tried to explain it to people in my school and they said I was looking for attention. I got diagnosed quickly but my physiotherapist didn't believe me.
*čłøüds* Štøüdøs*
*čłøüds* Štøüdøs* Acum o Zi
Thank you so much for your videos! When I’m older I want to be a doctor I know how the body works and a bit of the illnesses so your showing me what it’s like to be a doctor and teacher me more before I go to med school thanks!
Sweet Girl
Sweet Girl Acum 2 Zile
PCOS is pretty common!
Sally Byrne
Sally Byrne Acum 3 Zile
The zebra is the symbol for most EDS groups and we quite often refer to each other as Zebras.
Jessica
Jessica Acum 3 Zile
Hey, Dr. Mike! I'm a longtime Paramedic who, several years ago, had an EMT partner with what she THOUGHT was a series of obscure (and, according to all of her previous Physicians, unrelated) illnesses. She was frustrated that she always seemed to be sick, constantly requiring medical treatment for her illnesses (specifically, being prescribed a multitude of medications that only ever masked/minimally improved individual symptoms she was experiencing) and was always being treated as if she were a hypochondriac or even malingering and merely seeking narcotic medications. After telling me about how this had been a lifelong battle with her never getting any closer to an actual answer, I had her sit down and make an exhaustive list of the various symptoms and diagnoses she'd had throughout her lifetime. I emphasized to her that she needed to include EVERYTHING she could possibly remember (even adding things she may recall her family members mentioning from as far back as her birth and even if they seemed insignificant or unrelated to one another). I looked over the list (and it was LONG) and recalled a "zebra" diagnosis I had once read about many years before. The vast majority of the listed signs/symptoms/previous diagnoses matched this "zebra," but I asked her a few specific questions to attempt to rule out other similar/mimicking disorders. I told her that I may FINALLY have an ACTUAL answer for her and that she needed to make appointments with a PCP, a Rheumatologist and an Ophthalmologist and present each of them with the list she had made and, because this particular "zebra" diagnosis is usually made only by clinical observation and evaluations made by seemingly unrelated Specialists, to have them communicate with each other to see the picture as a whole and hopefully come to the same conclusion I had. It took another year or so before she found Physicians that were willing to listen, but she FINALLY got the answer to all of her lifelong problems and it was EXACTLY what I had suspected; the "zebra" was Sjogren's Syndrome. Needless to say, I was INCREDIBLY honored to have been able to play a role in getting answers for her 30+ years of questions and, more importantly, a prognosis and the TARGETED treatment she NEEDS to reduce the severity of her symptoms; preventing worsening of potentially life-threatening related complications/disease processes and DRAMATICALLY improve her quality of life. And though she is thankful for those things, she's most grateful for the knowledge she now has as a result of her journey because she finally has an explanation for what ailed her mother (and more than likely contributed/directly caused her death at such a young age; her 40's) and it means that she has answers for her children (who have some early signs of the same syndrome) and is now able to prevent them from having to suffer the way she did by getting them treatment while they're still young. The "zebras" are certainly still out there!
marie boschman
marie boschman Acum 4 Zile
I have Graves disease it would be awesome to see more info about it.
Joshlyne Villano
Joshlyne Villano Acum 4 Zile
Eagle syndrome: over growth of the styloid process cause facial and throat pain, tinnitus, headaches, and increased pain with rotation to the affected side.
Lezzerleee
Lezzerleee Acum 4 Zile
I've clearly had PCOS since I was 16 (Never had predictable periods) but didn't get diagnosed until I was 35. I'm glad doctors are more able to diagnose it now than they have been in the past. Another symptom (I've been told) is not just facial hair growth, but also courser hair growth up to the navel as well.
Alyssa Vermette
Alyssa Vermette Acum 4 Zile
other zebras you should talk about is vulvalichensclarosis and intercrainial hypertension I have both and the first one was caught when I was three it's not supposed to effect children but it's very rare if it does and the flares are the worst pains you can feel especially in the place I have it and it took till I was 15 for me to get diagnosed they think I was apparently born with it and can lead to permanent brain damage if not caught soon enough and often requires brain surgery at some point in your life .Another I have is autism and autism in girls is highly undiagnosed or over looked which was something I was also apparently born with and it got overlooked for 13 ish years .
Chelsea Greiner
Chelsea Greiner Acum 5 Zile
Gastroparesis!!!!
InfiniteLoveAwakened1111
InfiniteLoveAwakened1111 Acum 5 Zile
🦓Hypokalemic Periodic Paralysis🦓
William Sutter
William Sutter Acum 5 Zile
I recall reading that most people have 50-100 _de novo_ mutations (i.e. genes their biological parents do not share due to random mutations in the sperm and egg cells that created them or due to mutations during early embryogenesis).
simplicitylost
simplicitylost Acum 7 Zile
Sure there are horses and zebras, but what about the ultra-rare quagga!
scpbehindtheslaughter
scpbehindtheslaughter Acum 8 Zile
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Isabel
Isabel Acum 8 Zile
I have thalassemia or mediterranean anemia and I had to explain even to doctors and nurses. It's so frustrating, so, a zebra here. Fun anecdote: my mother also have thalassemia and, when she was pregnant (me!) she was called bcs the nurse thought she would die when she saw the results of their blood test. Her doctor knew she had thalassemia and, when she went there, the doctor said that everything was fine and it was only a misunderstanding with the nurse. She was afraid, but everything went well :3
Brittney Byrd
Brittney Byrd Acum 9 Zile
I know that I am definitely a zebra. Not only do I have a thyroid disease called Hashimoto's disease and Lupus. But I have been going back and forth to different specialist to figure out my neurological disease for over 11 years. Only to hear stuff like, I am just depressed and it's all in my head. Well after having a family member diagnosed who had a lot of the same problem. I was able to get tested and diagnosed with Acute Hepatic Porphyrias. I don't know if it really is as rare as doctors say? Or they over look it because they are trying to find those horses.
Iannah Jones
Iannah Jones Acum 9 Zile
Have you thought about mast cell disorders. They have only been officially recognized for about eleven to fifteen years. We surmised that I had one of these disorders but we now believe that I have EDS along with a mast-cell disorder.
Iannah Jones
Iannah Jones Acum 9 Zile
I am a zebra! I love this thank you!
TopHatWolf
TopHatWolf Acum 9 Zile
I have PCOS i appreciate it being mentioned here. I have periods constantly that never end, constant acne, lots of extra hair, bad reactions to sugar and constant weight increase no matter what I eat or do. But my doctor refuses to give me something to deal with the weight/sugar problems. I managed to fight to get a medication that stops my periods but she refuses to give me metaformin. What makes it worse? I'm a trans man.
natkatmac
natkatmac Acum 9 Zile
Some doctors are so avoidant to even considering zebras and we've got unicorns out here that have it really bad.
Blue Messenger Angel
Blue Messenger Angel Acum 9 Zile
Thank you for posting! I went undiagnosed with EDS for 42 years. I was treated horribly by doctors (as if I was malingering) until one sent me to a geneticist and the diagnosis was made. Now I have been diagnosed with many disabling comorbid conditions, and doctors tell me because they do not know enough about EDS, there is nothing they can do for me, and then they pass me to someone else, and on and on. I'm very ill, and I am a Mom of four. I have many unexplained symptoms including fainting and having seizures and am very anemic and malnourished because of my gut issues(which I cannot seem to get doctors to help with either). Nothing seems to help the amount of pain I am in every day. My quality of life is very low and I feel very hopeless.😔
TheConfusedBritishSpud XX
TheConfusedBritishSpud XX Acum 9 Zile
Can you show symptoms of PCOS when you are 13? I've been having periods for 3 years now and I had been regular for about a year but recently my cycle has become extremely irregular and my doctor said that I have unusual hair patterns for a female
gypsiesheart
gypsiesheart Acum 9 Zile
Would you consider doing a video on fibromyalgia? I have been battling this illness for over thirty years, but I was finally diagnosed with it three years ago after finding a doctor who listened to me about my symptoms.
Infinity Family
Infinity Family Acum 10 Zile
I have Neurofibrmatosis and eds. Life can be really hard but you push on xx
Susan B
Susan B Acum 10 Zile
You should add Complex Regional Pain Syndrome (CRPS) to the list. It's a rare severe chronic pain condition that affects the nerves from head to toe causing excruciating pain that never goes away. And there is no cure. I've been living with since since I was 16 years old, 20 years ago. It took over 3 years and 23 different doctors across the country to diagnose me. Then a few more times find a treatment
Ilissa Vogel
Ilissa Vogel Acum 10 Zile
Thank you for making this video!! *My first comment ever on a Dr. Mike video was actually asking about info on Dysautonomia/POTS! (Maybe add that to a future video, please?) 🙏🏼
Stellaluna Star
Stellaluna Star Acum 10 Zile
I have interstitial Cystitis. I saw more than 10 doctors and had 5 surgeries to get my diagnosis so that I could start healing. 6 years ago I had no idea what was wrong with me. Now I have it 95% controlled.
A S
A S Acum 10 Zile
Having EBS PCOS and thyroid disease like 😟
Shreyansh Mourya
Shreyansh Mourya Acum 10 Zile
I was visiting doctors for my back and hip joints pain for about 3 years and recently I was diagnosed with Ankylosing Spondilitis so If you have bad pain in your lower back in morning plese consult your doctor
Adina Bellviken
Adina Bellviken Acum 11 Zile
Idiopathic Hypersomnia please! It seems 10 years is the average time it takes to get a diagnosis, and multiple other incorrect diagnosis, expensive and unessessaey (and ineffective!) Treatment prior to diagnosis.
Kimberly Daniels
Kimberly Daniels Acum 11 Zile
Chiari Malformation is a Zebra...
Brittany Vail
Brittany Vail Acum 11 Zile
I would love to see something about Isolated Cataplexy. Doctors thought I was faking cataplectic episodes for years because I didn't--and still don't--exhibit any symptoms of narcolepsy. Even now, twelve years after my diagnosis and having had episodes in front of several provides, doctors still think that I fake it because of how rare it is. It's incredibly hard to find a doctor that even knows what it is, let alone finding one that is willing to treat it. I've been kicked out of more neurologists' offices than I can count because they don't believe it's a real diagnosis. And literally, no one talks about it in the medical community.
B Clower
B Clower Acum 11 Zile
Thank you!!! I wish more doctors thought this way! I especially appreciate your view on PCOS. Most doctors just look at you and think you're fat and lazy, and they offer only hormonal bc for treatment...but when your hormones are crazy, adding more doesn't always help, and hormones can dramatically affect a person's ability to lose weight. I'm a definite zebra. Another one that is misdiagnosed or not even thought of is Arnold Chiari Malformation. 9 years of symptoms to finally get diagnosed, and by that time, much more damage had been done! I appreciate this perspective you've given!
Rishika Gupta
Rishika Gupta Acum 11 Zile
so wait.. I am 21 year old and i was diagnosed with pcos 2 months back.. but the doctor said that its not really severe and all i need to do is exercise n maintain a healthy deit.. but i wanna know if i am at a risk of any heart disease or something... i am not obese (my weight is 43kgs as of now) plus i always had high testosterone.. so please someone?
slideshowgurl
slideshowgurl Acum 11 Zile
When I saw the stretchy skin on this video, I knew you were finally covering EDS! It took me until age 25 to finally get diagnosed. This was after years of health issues going back to infancy. So grateful to have answers and to see more people particularly in the medical field talking about EDS.
Natalie Barrett
Natalie Barrett Acum 11 Zile
Chiari malformation, after a lifetime of headaches and what felt like about a million doctors appointments I was finally diagnosed at 23 after a doctor I saw had recently read a journal article about it and recognised my symptoms. Not much has changed since, I spend my life in constant pain and still being fobbed off by doctors telling me it doesn’t have any symptoms.
Jen N
Jen N Acum 11 Zile
I have the zebra trifecta- hEDS, POTS and MCAS (and the dozens of other things zebras have). Definitely need to do MCAS and POTS
Danielle Kaye
Danielle Kaye Acum 12 Zile
Thank you for talking about pcos!! My doctors my whole life all said my only option is birth control. Now I know the care I deserve! 😭😊
Alicia Cromwell
Alicia Cromwell Acum 12 Zile
Please do an episode on Chiari Malformation 1 and narcolepsy. I love your videos! Thank you 😊
Ivory Cowan
Ivory Cowan Acum 12 Zile
Try having Chiari Malformation. Nobody knows anything about it. Took 42 years to get diagnosed after having symptoms for over 30 years.
Tricia Taylor
Tricia Taylor Acum 12 Zile
I'm currently awaiting genetic results for a condition called Hereditary Alpha Tryptasemia. It's a connective tissue disorder, but it also affects Mast Cell Activation. Tryptasemia can also mimic EDS, but you can also have EDS along with Tryptasemia. I also have Mast Cell Activation Syndrome and Dysautonomia. Both of these took years to diagnose and have proven very difficult to manage and treat.
Paige Keese
Paige Keese Acum 12 Zile
Please make this a series. I would love to see a video mentioning Arnold Chiari Malformation. I have this condition and it is another one that goes largely undiagnosed or misdiagnosed. There is no cure and not enough research on this condition. This condition also can cause or be related to a lot of other neurological comorbidities that go untreated, unnoticed, and misdiagnosed. EDS is one of the comorbids that some with Chiari Malformation can have.
Mathilde Duflos
Mathilde Duflos Acum 12 Zile
I had to wait for 5 years, while telling my doctors about several symptoms of PCOS, before a dermatologist finally diagnosed it. I just felt so bad for those symptoms for years before finally being heard...
Jenai Rennie
Jenai Rennie Acum 12 Zile
Motor Neuron Disease, triggered by a traumatic event. This was mistaken in my father for pinched nerves and/or hyperparathyroidism. Which was why it took over half a year for his official diagnosis. When we already knew due to my grandmother passing of it :/ shouldn't have been a zebra, but was one for us
Zevhara
Zevhara Acum 12 Zile
I'd love to see you talk about ME/CFS if you haven't already
Mercedes Thompson
Mercedes Thompson Acum 12 Zile
I'ma vote for Postural Orthostatic Tachycardia Syndrome (POTS). Was misdiagnosed for years with epilepsy, stress induced manifestation, conversion disorder, menstrual hormones, 'faking it/ being dramatic', etc. Good now, but there's many doctors that believe it doesn't exist...
Amelia Brinker
Amelia Brinker Acum 13 Zile
I have EDS along with Hashimotos. My family has a bunch of weird health issues going on (most likely genetic) and my aunt, 2 cousins, mom, and me all have EDS. I was diagnosed when I was 16 even though I've had symptoms for as long as I can remember. No one would believe the issues I was having and insisted that I didn't have EDS because I had tight muscles. In reality I had tight muscles because my body is overreacting and tightening down since my joints are so loose. We had given up on trying to be diagnosed with it when my allergist immunologist told me that i needed to see a geneticist because there is no way I don't have it. I just had to have a prosthetic piece surgically placed in my ankle since I've completely torn through my ligaments twice now. As for the Hashimotos, I was diagnosed when I was 18 and I was the youngest person my doctor has ever diagnosed with it. We mentioned that my grandma has hashimotos so my doctor decided to draw labs to see if I had it. He told us he was in shock that I had it because he never would've suspected it in someone so young. My family has so many health issues going on right now that we are going to specialists for. For just me alone I have, CRPS, POTS, EDS type 3, MCAS, a physiological tremor, anxiety, depression, PTSD, GERD, Menieres, CIU, migraines, asthma, Hashimotos, Raynauds, and there is even more that we are currently looking into genetically. To say I'm a Zebra would be an understatement!
Heaven Johnson
Heaven Johnson Acum 13 Zile
POTS should definitely be on here. It's shocking how many doctors will dismiss the symptoms.
Alexis Popek
Alexis Popek Acum 14 Zile
As a woman with PCOS and hyper mobility (not EDS) I greatly appreciate your video. Took me 25 years to finally get my diagnosis for hyper mobility. So many years of pain, so many different doctors, tests and medicine. I had almost given up hope.
Kylie L.
Kylie L. Acum 14 Zile
I have EDS! Glad to see it’s getting some recognition. Tho my diagnosis was given very quickly compared to others I know (only about a year) it was still difficult
Layla Williams
Layla Williams Acum 14 Zile
Celiac Disease seems like a zebra disease.
Elisa Martinez
Elisa Martinez Acum 14 Zile
Thanks for this video. I was diagnosed with 2 rare diseases (an overlap autoinmune syndrome) and still testing for a probable third one. I waited for months and nearly died before i was finally diagnosed. Zebras do exist! (Well i'm more an unicorn) Please don't forget about us...
Maisy Perez
Maisy Perez Acum 14 Zile
PLS DO A FULL VIDEO ON THYROID DISEASES
Countrymusiclover424
Countrymusiclover424 Acum 15 Zile
Even though it’s very common, doctors are quite unaware of treatment for endometriosis.
Ananya Gupta
Ananya Gupta Acum 15 Zile
I'm a pre-med student and remember Meredith from Grey's anatomy using that saying in one of the episodes of Greys anatomy. Made me really happy as i already knew it! Even EDS was shown and diagnosed by Alex Karev! Will remember these zebras for sure :)
Avtfol
Avtfol Acum 15 Zile
I have insulin resistance, my doctor told me to lose weight or I'll get diabetes and won't be able to use the insulin medicine easily. But everything else is normal in me.
Amy Simmons
Amy Simmons Acum 15 Zile
Please consider covering Klippel Feil Syndrome or Sprengels Deformity! My son has both and I'd love to hear your take on it.
Ava Fortunado
Ava Fortunado Acum 15 Zile
Is that a brain and a heart map like portrait at your wall?
bea pattenden
bea pattenden Acum 15 Zile
i’m so worried my eds is gonna get worse, i’ve got quite an athletic lifestyle, and i love love love the sports i do, it’s torture being away from them in quarantine:( but my symptoms have been getting worse, and i’m scared itll one day get to bad i won’t even be able return to the thing i love so much:(
FIreWith5Sticks
FIreWith5Sticks Acum 15 Zile
I was told to get the F out of my surgery during multiple subluxations due to EDS, sadly the gross neglect of those with symptoms of EDS still goes on today. The good news is that, 25 years ago I met 3 genetic specialists that did agree and diagnosed me, tested the collagen etc. So, to all me fellow zebra, stay strong and get second opinions. You may be told you are mad, you’re not. Stay strong internally and be gentle with your management and those around you, it will help you. I’ve spent 20 years with development of management strategies and discuss this with hospitals, and help students learn about EDS now, sadly not as much during covid. Swimming and Pilates are the key for me, even with bracing on I still do it to what ever degree I can. The pain is there anyway so treating your self better even if it is painful will bring little moments of peace, and then it will increase to the point you have more control. Educate your selves if you can on how it works as a genetic condition, and the effects on you personally. You can help your self more and more. Then it may just rub off on others in a positive way. You must take control over your own life, body, accept your actions and situation and make it better for you. There is no magic pill, just hard work that will pay off in years to come. Little steps every day, your mind and body will start to work together again and you will have your life backer with many, a new better life. Good pain relief that you can use when it’s bad and then use as needed as you gain more control is key. They don’t like you managing your self but you have to. Get a vegetable juicer and fill your body with nutrients as this will help and not just with EDS, but also the conditions that tend to come with it. If you have it, it’s not going away but, you can create a better life even with EDS in it, and for those that see you go through it. It’s good see people taking about it. People used to get locked up in institutions because of it.
Jenna
Jenna Acum 16 Zile
Idk man. I have veds and I can promise you, I'm stiffer than a board 🤣 well besides my thumbs lol
Celia Atkinson
Celia Atkinson Acum 16 Zile
Elhors Danlos syndrome. It took me forever to get this diagnosis along with gastroparesis. Thanks to a physical therapist. It also took forever to get a diagnosis of PCOS because at the time I had no cyst in my ultrasound. It was surgery that found them.
WellDubs
WellDubs Acum 16 Zile
What about Alopecia? Would that be considered as a "Zebra" condition?
Ananya Singh
Ananya Singh Acum 16 Zile
I did go to 3 different doctors before I was diagnosed with PCOS, it was not a pleasant experience
natureallmighty
natureallmighty Acum 16 Zile
I was lucky with PCOS diagnosis, I only missed two periods ever, my doctor, knowing that I am very regular, sent me to ObGyn and Endocrinologist, got my diagnosis confirmed and treatment on the way within a week.
Cintia Nyerges
Cintia Nyerges Acum 16 Zile
Wow how much I forgot that I was diagnosed with PCOS when I was a teenager! I should definitely need to check up on that. You have to make a series of this content.
Charlie 2.0
Charlie 2.0 Acum 16 Zile
I feel like the phrase needs to be amended. It should be "When you hear hoofbeats in Central Park, think hoofbeats, not Zebras." Some of us are not Central Park. We're the bloody savannah.
Sephina Rose
Sephina Rose Acum 17 Zile
Thank you so much for talking about EDS Dr Mike. Thank you. Most doctors know so little about it. I have a million stories to tell about my experiences with it. For mention, one doctor tried to diagnose me as "clumsy" the year before I got my actual diagnosis for it
Spohie
Spohie Acum 17 Zile
Suggested zebra. Hiatus hernia in young patients. Most doctors and medical information say it affects older people. Myself included I know 6 people who fought to get an endoscopy and subsequently got diagnosed with hiatus hernia in their 20’s. Every one of us have had a doctor be surprised that we had a hiatus hernia so young. I do not know these people though support groups, but through work or socially.
Spohie
Spohie Acum 17 Zile
I know several zebras. PCOS and EDS; EDS runs in my fiancé’s family and also one of my best friends also has EDS, another of my best friends has PCOS. They all wished their doctors had thought zebras not horses.
Alli In Wonder
Alli In Wonder Acum 17 Zile
Thank you for talking about EDS. I was diagnosed at 9 years old thanks to my my mom being diagnosed at 40. I am moderately to severely affected with lots of the common issues...heart problems, dental problems, common topical analgesics being ineffective, fast metabolizing of medications... It’s extremely difficult to treat. I would love more information on what EDS patients should talk to their doctors about and what to pay attention to since we have had this our whole lives it can be very difficult to know what isn’t “normal” for us and should be looked at. Even though my doctor has been aware of my numbness and tingling in my hands and feet, no one ever ordered a nerve conduction study and I didn’t know to ask for one.
Maia Maria Gemai
Maia Maria Gemai Acum 18 Zile
I've been struggling with PCOS since the first time I've got my period (12 years old). I've started dealing with cystic acne after a couple of months from my first period, however, I haven't given it much thought since I believed it was caused by a regular hormonal imbalance some girls deal with in the beginning and I thought it would disappear on its own. After a 2 years of struggling I've finally went to a dermatologist, who directed me to a gynecologist. The gynecologist finally discovered I had a 2 cm cyst on my right overy and diagnosed me with PCOS and sent me to an endocrinologist to help me balance my hormone levels. The endocrinologist prescribed me some pills which she said will help me get rid of the cyst (and those pills normally work because I've had a friend who managed to get rid of hers), unfortunately, they did not work for me , but she kept telling me to take them. So I basically took them for 3 years and during that time my cyst kept growing not at all affected by those pills, until it grew to 8 cm. At that point the cyst was bigger then my overy so the only way to get rid of it was by getting it operated, which I finally did in 2019. However, I would never wish on anyone the fear of not knowing what is going on with your own body, the fear that during the operation there is a possibility of removing your overy or even the whole reproductive tract and I definitely do not wish on anyone to ever fell as vulnerable and insecure as I felt in my own body. I know that having kids is not everyone's dream and I, as well as everyone should, respect that, however, I've always wanted to start my own family and not being able to choose whether or not to have children that was simply heartbreaking for me. So if anyone is dealing with this out there, I hope you know you are not alone and you are self-sufficient and worth fighting for and you have complet control over your own body even if it does not seem like it all the time. I'm sorry for rambling. 💜💜💜
peace , 21
peace , 21 Acum 18 Zile
Doctor could you please do a reaction on "jordindian types of doctors"
Simmy The
Simmy The Acum 18 Zile
Lol doing a project where I have to put PCOS and ehlers danlos syndrome, and I just stumbled upon this video while doing it.
Faith Leah
Faith Leah Acum 19 Zile
PCOS & Endometriosis!! I had both, ended up having a full hysterectomy at age 25 😩 and I had to go through multiple drs to find my diagnosis; only after diagnosis MYSELF.
Commander Carrot
Commander Carrot Acum 19 Zile
I can dislocate my shoulders
Vanessa Ives
Vanessa Ives Acum 19 Zile
Look up postural orthostatic tachycardia syndrome
Amanda Stirnaman
Amanda Stirnaman Acum 19 Zile
Dr Mike, Then you for calling out PCOS. I was diagnosed with this and endometriosis when I was young after being told for 3 years after being told from 13-16 years old I was just attention seeking. And still the only treatment I Received for this was surgery to remove the Polly sister cyst on my ovaries. Until I was diagnosed with diabetes And now with all the scar tissue I have It's making it very hard to lose weight. I wish more doctors were like you.
Skye Turner-Boesel
Skye Turner-Boesel Acum 19 Zile
how to treat insomnia
CASSIE THIBODEAUX
CASSIE THIBODEAUX Acum 20 Zile
Please show images of less drastic hyper-mobility! 😄 There is a misperception in medicine that EDS dx requires PMH + frank joint disc locations, *extremely* stretchy skin, and marfanoid features. In reality, many EDSrs "look" normal & tests come back normal = oh they are just anxious hypochondriacs. Had someone done a Beighton score when I was a teen I may have gotten a diagnosis, support/validation, and proper medical/preventative care before my diagnosis by a geneticist at 39. Clinical pharmacist here. Thanks for what you do!
Warning Do not disturb
Warning Do not disturb Acum 20 Zile
I was diagnosed pcos after my ultrasound. I had I brought it up with my doctor because my nan said it runs in the family. After being diagnosed my doctor checked for high cholesterol thyroid to make sure it wasn’t anything else. I have most of the symptoms of pcos.
Feri rad
Feri rad Acum 20 Zile
After watching your video i realized that i had all the symptoms to PCOS and i got tested , my testosterone and cholesterol levels were off the charts as well as LH/FSH! Thanks to you i insisted to get tested and i was right !sooo thankful for your videos!!! Love you Doc ❤️😍🥺
Ssenunni J
Ssenunni J Acum 20 Zile
. . . Oh no all 3 I'm highly likely to have based on familial medical history. I came for the pcos info and didnt expect this to address my other issues lol
Marz Wallace
Marz Wallace Acum 21 o Zi
Dystonia. Cervical dystonia
Physiofreak 92
Physiofreak 92 Acum 21 o Zi
Lipedema is a very tricky disease that still needs a lot of research. Would be cool if you talked about it on your channel. I'm acually doing my master's thesis on this subject
Hazel Angus
Hazel Angus Acum 21 o Zi
Trigeminal Neuralgia, I think that may be a zebra condition in general, although the way I have it might be unusual because I was so young. I'm British, but you probs have the same problem over there. I've had it at least since I was 13 and probably earlier. I only say 13 as I remember having it during some school exams. I told multiple doctors and my dentist about it and the doctors said go to the dentist and the dentist said it was sensitive teeth. I tried to explain that I had the pain in cycles and that I really didn't think sensitive teeth meant you were in agony for no reason for hours on end. But they still said sensitive teeth. The pain changed as I got older - got worse and I also started getting a hypersensitive cheek while I was having these episodes. Sometimes there was a different kind of pain that is really difficult to describe - like when you get a dead leg and it comes back to life, kinda. While looking up sensitive teeth on the internet for the billionth time and trying to work it out, I came across someone who had been misdiagnosed with sensitive teeth but actually had TN. It was a revelation! I didn't know whether I had TN or not, but I knew then that there was a possibility that my pain was neurological rather than anything to do with the teeth. Some time later, I happened to be seeing a neurologist for something else (I'm a complex patient) and ran my symptoms by him. He said it sounded like TN. Some time after that, I was mid-episode and absolutely hating it, so in desperation rang the out of hours service. Happened to get one of my regular GPs, which is a crazy coincidence. I hadn't actually told him about this issue before. He diagnosed TN immediately, prescribed gabapentin and amitriptyline and said, and I quote, "Feel free to play around with doses etc., until you find something that works". That's because TN is such an individual condition, really hard to control, pretty much does what it likes and nobody's medication regimen is going to be the same. By that time I was 29, so over 16 years undiagnosed.
Cantetinza17
Cantetinza17 Acum 21 o Zi
All of these are really interesting.
Sage Claire
Sage Claire Acum 21 o Zi
I was diagnosed at 15 with EDS, it was a rough road and I fought for years to get answers. I was to the point my body was failing in every way conceivable. If I wouldn't have had the doctor who fought for me when I was younger I have no clue where I would be. It still affects me in every aspect of my life but even though its not curable knowing what it is keeps me going.
Claudia
Claudia Acum 21 o Zi
My life long since birth best friend has EDS (Ehlers-Danlos Syndrome) and she’s a real fighter. Poor girl’s whole life gets turned upside down and is constantly in and out of wheelchairs and the surgery. But she’s so confident, and fearless, and determined to Not let it stop her from living life to the fullest. I love her with all my heart
Jalyn Lofton
Jalyn Lofton Acum 22 Zile
I'd love to hear you talk about my condition called Arterial Tortuasity Syndrome. It's very rare and I've never met a doctor who knew about it.
Bryna Gleich
Bryna Gleich Acum 22 Zile
Legg calve perthes... in girls
Katia Cleroux
Katia Cleroux Acum 22 Zile
FPIES. Our middle has it, and until her, I had zero clue this existed, even as a practical nurse
Katia Cleroux
Katia Cleroux Acum 22 Zile
I have experienced dislocations and subluxations since puberty, and was overly flexible beforehand. I've had shoulder surgery that showed overly stretched ligaments, dislocated my rib by driving my car (just turning the wheel) and had a surge of symptoms during each of my pregnancies. Nothing was ever brought up to me other than hypermobility, until a physio (which I have been referred to for the last 15 years weekly for pain management with no reasoning) brought up EDS. I mentioned it to my family doctor, and since no one in my family has had a diagnosis, it was shrugged off, and said that the treatment would be the same either way. No one looks for the zebras. I'm in the hopes of getting a second opinion but also unsure. This is why some diagnosis are often overseen. They're zebras. My daughter had autism, and the first resident who saw her about the issue literally said she couldn't have it because she was a girl and symptoms wouldn't show in girls until 6 and above.
Mar Ly
Mar Ly Acum 22 Zile
Thank you for covering PCOS! I got my diagnosis after pushing and pushing for the right labs and ultrasound to be done. I was 15 and my doctor didn’t believe me until she finally got tired of my insistence. I wish I’d had a doctor like you!
Xperie
Xperie Acum 22 Zile
Terribly overlooked borreliosis also known as lyme disease. It's not so uncommon in Europe to get it form a tick. Symptoms are usually things like fatigue, headaches, later joint pains and other depending on type of bacteria. Symptoms may not be noticeable for years.
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